Join the Rare Disease Summit session “Harnessing the Power of Limited Data – Turning Rare Disease Information into Commercial Insights” on March 17, from 2:00–2:45 p.m. This live event is designed for rare disease leaders who need to make confident commercial decisions despite small, fragmented data sets.
In just 45 minutes, you will explore innovative data sources and partnerships that can help you better identify and understand rare disease patients, even when traditional datasets fall short. Learn practical techniques for processing, linking, and activating disparate data streams in a commercial setting to inform market sizing, patient identification, and strategic planning.
The session will also cover key legal and ethical considerations, including the differences between de-identified and non-de-identified patient data, so you can unlock insights while safeguarding patient privacy and complying with evolving regulations. You will walk away with a clearer view of how to use limited data responsibly to shape access strategies, field deployment, and overall commercial approach in rare disease.
Hear directly from experts working at the intersection of data and rare disease: Hillary Gretton, Director of Data Strategy at Claritas Rx, David Du, Senior Manager of Market Access for Rare Disease at Chiesi Group, and Carlos Martin, Chief Commercial Officer at Neurvati Neurosciences. They will share real-world perspectives, examples, and best practices you can apply immediately to your own rare disease portfolio.
